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The Mission for
the Einstein Challenged Society is complicated
because we have to rectify decades of actions which
have only served to unjustly deny people basic human
rights.
There will be no solutions in a year or two.
Re-education and health recovery do not come
quickly. These stated goals and objectives are
designed to insure that as progress is made that the
Einstein Challenged Society can be there for people
nearing the end of their journey as well as for
those starting out.
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This is our MISSION…
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To change the perception and achieved
realities for children born with the
Trisomy 21 genetic anomaly
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As the Down Syndrome label has excessive
negative baggage associated with it
from the flawed and prejudicial
studies conducted in the 1950’s and
1960’s, and since we can not change
the attitudes of medical
professionals in any form of a
timely fashion, we need to use a
different identifier for the Trisomy
21 genetic anomaly ~ EINSTEIN
CHALLENGED.
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Einstein Challenged still recognizes the
genetic anomaly, but the focus changes
from the person being a defective
sub-species of human as is the reality
now ~ the person becomes a human being
with developable potential.
It is time to harness the power of a
name to help those in need.
It seems a pragmatic approach to name
the Society and to use as the condition
identifier the name of the most famous
human being with this genetic anomaly.
Human being is the operative word, and
no one writes off Albert Einstein as
just so much human waste. |
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Using
new teaching methods and techniques
changes the playing field so that
Einstein Challenged children have the
same opportunities for success as
non-labeled children.
The EINSTEIN CHALLENGED child gets to
set their own limits based on their
efforts rather than have limits imposed
by PREJUDICE and DISINFORMATION.
·Earliest intervention is essential. We
can not stop the medical community from
disseminating INVALID horror stories
about the Trisomy 21 Child.
They are doctors, and they do hold your
child hostage for their dissertation
about what went wrong with the
institution abused children in the
studies they hold to be inviolate. |
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Instead of
forcing the parents to mourn the loss of
the child they did not get, we need to
help them celebrate and see the unique
child they were given who will expand
their world as it has never been done
before.
Parents
have to be told the truth, but the truth
is not in the horror story the doctor
told them.
Having a Trisomy 21 child [an EINSTEIN
CHALLENGED child] is not a ball and
chain of misery around their ankles or
their hearts.
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Their child is not being dropped into an
abusive institutional setting as is
required to validate the doctor’s
dissertation, and there have been
advances in metabolic and nutritional
research which alleviate and negate the
horrors. |
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The
truth is that they must be proactive in
their child’s life.
They will see some incredible
achievements from their child, but it is
not an easy road.
There is much work to be done by them
and their child. It is not necessarily
easy.
They need to be aware of the real
prejudice their child will face, and the
prejudice can start as early as the
first hour in N.I.C.U.
Early
intervention, a development plan, and a
commitment to results can allow their
child to realize a future where they are
completely independent.
The
exact same goals as parents with
non-labeled children have for their
children. EINSTEIN CHALLENGED means not
lowering the proverbial bar whatever it
takes. |
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Parents need to be told that there is “a
light at the end of the tunnel”, and
contrary to what the doctor just said,
“it is not the headlight of an oncoming
train”.
In
that light ahead, there are blue skies,
flutterbies, and the music of laughter.
There is also a lot of sweat and tears
with rewards
We need to empower Dads to stay in the
family unit. Over 90% of the time, they
are driven out. The social and
educational authorities count on this
reality. A single mother is easier to
bully, and she is more likely to be
complacent
There are resources out there, but they
give their help to organizations and not
to individual families
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The EINSTEIN CHALLENGED Society is the
bridge builder from the organizational
level to the individual family level.
To
comply with the laws, this is a labour
intensive level because it necessitates
the composition of many reports
We need to create resources for families
including a BIRTH PACKAGE that tells
them what they need to start doing from
Day One.
In
this way, they get to realize the
day-to-day successes and achievements
which will make them stronger as a
family.
We
help them to change the family focus to
success realization rather than family
problems |
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Rather than creating incurable
illnesses, we need to invoke new health
and nutrition research to combat and
rectify the medical issues associated
with Trisomy 21.
Behavioural issues are most times
frustration based due to communication
impediments: removing the impediments
tends to remove the behavioural issue.
Resources need to be applied
specifically in single parent households
to implement these realities. Specific
counseling may be part of the
methodology so that these families enjoy
building on successes, and we need to
expand supports.
Parents must be given information PRIOR
to the development of medical
conditions. Working with broken is not
in the best interests of the child. The
old saying, “an ounce of prevention is
worth a pound of cure” fits here. The
use of the BIRTH PACKAGE fulfills this
need. |
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We
need to establish a resource pool which
includes information, contacts,
resources for challenges, maps through
various government mazes, and maps
through the obstacles of the education
systems intended to deny graduation at
the completion of high school. |
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